It’s Michele, the wife. I thought I would try my hand at another (not so) brief update.
It’s hard to believe it’s been almost 6 months since Scott had the seizure that set us on this crazy journey. It seems we’ve been in constant motion with little time to rest.
But now I’m happy to report we have just come back from a much needed vacation! Last week Scott, Josephine and I flew out to Denver, Colorado to visit with friends and family. We made sure to alert most of our friends ahead of time that we didn’t want to spend our vacation talking about Scott’s brain cancer, we get enough of that at home. We planned to focus our time relaxing, catching up with friends, and having fun with our daughter. And for the most part, we did just that and had a wonderful time!
There were two other bits that made this Gray family excursion extra special. One, Scott’s hair has suddenly made a great come back. If you don’t recall, the radiation had left him with a kind of misshapen “hair beanie”. They told us not to expect his hair to return until next year, if at all, so I’ve been using a clipper to cut it as short as possible but not shaved clean. He’s been constantly wearing a hat to protect his scalp and cover the odd looking hair style but suddenly most of his hair has returned! I’m still cutting it as short as possible as it continues to fill in. I’ve really become accustomed to his “buzzed” look. That’s too mild. To tell you the truth, I think Scott is a total babe with his goatee and buzzed scalp. Yep, that’s right, he’s a hottie and he’s mine. The second thing we are grateful for is Scott’s doctor gave him the “OK” to drive again, beginning on our vacation to Colorado. YIPPEE! We are all so glad that he has that aspect of his independence back.
So, tomorrow he have the next MRI and follow-up appointments with his neuro-surgeon and neuro-oncologist to review his progress. We are also flying out tomorrow night for Maryland to see the neuro-oncologist at the National Institute of Health. At the NIH they will inform us of the latest developments in brain cancer treatment and review Scott’s progress as well. The doc there is very encouraging and optimistic and will continue to work in conjunction with Scott’s docs here to give him the best care available. All good stuff.
Please continue to pray for him and us. I assure you that your prayers are received by God and felt by us. We are daily lifted up and sustained. There have been countless times when I’ve felt that all I could hang onto were the prayers of others and then, so soon after, God answered and I was back on my feet again. Thank you and bless you!
